| As the Regional Core Center for Region V-West of the National
Hemophilia Program, the Hemophilia Foundation plans and organizes biannual
Regional Meetings that provide the opportunity for consumers
with bleeding disorders and their care providers to come together to learn,
share ideas, develop strategies and to link resources. The Hemophilia Foundation
is nationally recognized for its excellence in planning and providing regional
training opportunities that allow individuals with bleeding disorders the
opportunity to voice their needs and affect their care.
The Foundation communicates information that
will affect the bleeding disorder community to families, Board members, staff,
treatment centers, and the general community. Hemophilia Foundation staff
provide school and employment advocacy to ensure that school
and work environments understand and support the needs of an individual with a
bleeding disorder. GLHF staff provides presentations and training
programs to community groups to increase the awareness
of the impact and prevalence of bleeding disorders with a goal of broadening
community awareness and support for the mission of the Foundation.
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