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Advocacy is the act of speaking or writing in support of something.
For GLHF, advocacy involves speaking or writing on behalf of persons with hemophilia and bleeding disorders.
The purpose of GLHF advocacy is to influence policy, procedure, law or administrative rule so that GLHF clients will benefit and be protected; or, in the case of harm, have the harm undone. 

 
Legislative Advocacy involves the law or administrative rule and the impact of a new law or change to a current law or administrative rule in Wisconsin and in Washington.

• Wisconsin Advocacy Issues: (click here for more information)

  • ACCESS TO A FULL FORMULARY OF CLOTTING FACTOR CONCENTRATES  

  • ACCESS TO FEDERALLY-FUNDED HEMOPHILIA TREATMENT CENTERS (HTCs) THAT PROVIDE CLOTTING FACTOR CONCENTRATES

  • ADEQUATE FUNDING FOR THE WISCONSIN CHRONIC DISEASE PROGRAM (WCDP)- also known as the Disease Aids Program

  • STANDARD OF SERVICE FOR ANY PROVIDER THAT SUPPLIES CLOTTING FACTOR CONCENTRATES TO PATIENTS WITH BLEEDING DISORDERS FOR ADMINISTRATION IN THE HOME
     

• Specific Examples of Advocacy:
       - Develop legislative contacts
       - Write a letter, contact your legislator or visit Madison or Washington in support of a particular
         piece of legislation that effects people with bleeding disorders
       - Partner with a legislator to introduce a bill that supports an important issue in the bleeding disorders community

• For information on National Advocacy Issues got to the NHF webpage (http://www.hemophilia.org) and click on "Advocacy Center".

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