Patient & Consumer Rights Advocacy

Legislation

  
Advocacy is the act of speaking or writing in support of something.
For GLHF, advocacy involves speaking or writing on behalf of persons with hemophilia and bleeding disorders.  The purpose of GLHF advocacy is to influence policy, procedure, law or administrative rule so that GLHF clients will benefit and be protected; or, in the case of harm, have the harm undone. 
  

What is Patient & Consumer Rights Advocacy?

Patient Rights Advocacy involves the impact of policy decisions or actions by medical providers that may impact clients.

• A provider that does not follow the standards of care established by the National Hemophilia Foundation's Medical and Scientific Advisory Council.
   

• Specific Examples of Advocacy:
   

  • Inform clients of their appeal rights
     

  • Obtain support from NHF and hemophilia providers
     

  • Pursue policy change via legislative Advocacy

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