At
GLHF, we ended our fiscal year on
September 30th and we
went out with a bang. Our amazing
inaugural Family Camp hosted five
families learning about camp life,
trying authentic camp activities
like fishing, canoeing and hiking
and enjoying impactful networking.
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Family
Camp’s A Hoot
GLHF hosts its inaugural Family Camp
Great
Lakes Hemophilia Foundation hosted
its inaugural Family Camp on
September 30-October 2 at Camp
Matawa in Campbellsport, WI. Camp
Matawa is located in the Kettle
Moraine State Forest and offered a
beautiful fall landscape for this
weekend of fun.
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HTC History of Growing Needs and
Financial Challenges
Why preserving HTC funding is
critical
By Rebecca
Clay
Originally
Published in Hemaware July 2011
Hemophilia
treatment centers (HTCs) have become
victims of their own success, says
Marion Koerper, MD, medical advisor
to the National Hemophilia
Foundation (NHF). “The government
sees no more patients in hospitals,
no new joint disease, no new
infections, and asks, ‘Why do we
need HTCs anymore?’” says Koerper,
director emerita of the HTC at the
University of California, San
Francisco.
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Walk Wisconsin!
Thank
you Wisconsin! We had 300 walkers
across the state raise nearly
$50,000! These dollars go to
individuals and families living with
a bleeding disorder in your
community. Thank you!
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Decorate for a Cause
Decorate
for a Cause with Great Lakes
Hemophilia Foundation’s poinsettia,
wreath and coffee sale.
Back by popular demand GLHF will be
offering coffee in the holiday sale
again this year. As a special way to
commemorate GLHF’s first Family Camp
we are featuring our very own
Campfire Roast...
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Plasma Users Group Takes Stand on
Health Reform and Medicare
National
Hemophilia Foundation
E-Notes, October
2011
The
American Plasma Users Coalition
(A-PLUS) comprises patient advocacy
groups representing people with
hemophilia, alpha-1 antitrypsin
deficiency and other conditions who
rely on plasma-based products to
remain healthy. NHF is a founding
member of the group, which formed a
few years ago to coordinate advocacy
related to health reform.
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Program &
Services Updates
Stay up to date with the latest
programs and services happenings at
GLHF
GLHF programs
are designed to educate and support
individuals and families with
bleeding disorders by increasing
public awareness, ensuring access to
needed medical services, providing
relevant information and resources,
building a supportive community
among individuals and families, and
promoting choices that lead to
optimal health and living life
without limitations.
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Not
Alone
Single parents find support while
raising children with bleeding
disorders
By Kadesha
Thomas
Originally
Published in Hemaware October 2011
Alicia
Unger is awake by 6:30 a.m. every
day. She has only an hour or two to
squeeze in a day’s worth of chores:
laundry, cleaning, cooking,
maintaining a one-acre yard and
checking e-mail. Once her
17-month-old son, Landon, wakes up,
Alicia starts her other job: keeping
a close watch on him to make sure
nothing goes wrong.
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Sustaining Support Lasts a Lifetime…
You
can put your gifts to work now and
in the future by planning long term
support of the bleeding disorders
community through sustained giving
to GLHF.
We all know good health insurance is
imperative for people with chronic
health conditions such as bleeding
disorders.
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