Advocacy

GLHF provides public policy advocacy on behalf of, and in partnership with, the bleeding disorders community. We educate government officials about the impact that existing laws and pending legislation may have on someone living with a bleeding disorder. 


The House of Representatives did not repeal and replace the Affordable Care Act (ACA, otherwise known as Obamacare) with the American Health Care Act (AHCA) as proposed by the new administration on March 24. Therefore, the ACA/Obamacare will remain our country's current healthcare law. It is still important that everyone in our community continues to stay involved and contact your Members of Congress to share your story about living with a bleeding disorder. GLHF will continue to advocate for access to care and will support you during this uncertain time. Our strong partnerships with the National Hemophilia Foundation and regional Hemophilia Treatment Centers position us to work at state and federal levels to meet any challenges together.

Visit your representative's and/or senator's website. You can find them via Google or visit: www.house.gov and www.senate.gov


GLHF's Wisconsin Legislative Day 

On April 19, 2017, GLHF staff, along with members of the bleeding community, headed to Madison to meet with Representatives and Senators. We joined forces as a community to educate our legislators about life with a bleeding disorder and issues that impact us right here in Wisconsin. This important day came at a time when health care policy is rapidly changing in ways that could directly impact our community.

Thank you to everyone who who joined us and helped advocate for individuals and families living with a bleeding disorder! 

National Hemophilia Foundation's Washington Days

Washington Days is a unique, annual opportunity for local bleeding disorder chapters to lobby nationally for issues important to the bleeding disorders community. In past years, participants addressed issues such as maintaining funding for Hemophilia Treatment Centers (HTCs), increasing the availability of Medicare funds to cover the cost of hemophilia drugs at skilled nursing facilities and monitoring hemophilia medications that could move from Tier III to Tier IV pharmacy coverage.

On March 8-10, 2017, GLHF joined nearly 500 members of the bleeding disorder community for the National Hemophilia Foundation's Washington Days in Washington, D.C. This record-breaking number of participants from 46 states met with legislators to discuss a number of issues. Participants asked to keep several key patient protections in place when considering any healthcare legislation that replaces the Affordable Care Act (ACA, otherwise known as Obamacare). The focus of these issues was timely since House Republicans released the American Health Care Act (AHCA), legislation to reform the ACA on March 6. Although a vote was scheduled to take place to repeal and replace the ACA, the administration pulled the bill since it was not expected to pass in the House of Representatives. Therefore, the ACA/Obamacare will remain our country's current healthcare law. This proposed bill maintained the elimination of the lifetime and annual caps on the federal requirements for essential health benefits, but repealed the Medicaid eligibility changes supported in the ACA after 2020.

GLHF will keep you informed about this critical issue and continue to advocate for access to care, and will support you during this uncertain time. Our strong partnerships with the National Hemophilia Foundation (NHF) and regional Hemophilia Treatment Centers (HTCs) position us to work at state and federal levels to meet any changes together.

Crosby shows what it's like for him to infuse on a daily basis, sharing the process with people during Washington Days.


Contact GLHF: 414.937.6782

Please send us your story about living with a bleeding disorder. Personal messages, photos and "leave behind" notes are the best way to put your face on an issue! You can send your story to kkoppen@glhf.org or call 414.937.6782 for more information or assistance.

Visit NHF's website.