Advocacy

GLHF provides public policy advocacy on behalf of, and in partnership with, the bleeding disorders community. We educate government officials about the impact that existing laws and pending legislation may have on someone living with a bleeding disorder. 




Join GLHF on Wednesday, February 28 in Madison for the Wisconsin Legislative Day as we come together as a community to educate our legislators about life with a bleeding disorder and the issues that impact us right here in Wisconsin.

This important day comes at a time when national health care policy is rapidly changing in a way that may impact the bleeding disorders community.

Your voice is needed now more than ever!


REGISTER TODAY


Attendees: We encourage all those affected by a bleeding disorder in Wisconsin to come share their story. This is an excellent opportunity to introduce children and young adults to advocacy. The day will consist of training, lunch, and then a quick walk to the capitol for afternoon meetings.
Training will begin at 9:30 am. 

Location: Best Western Park Hotel, 22 S Carroll Street, Madison, WI 53703

Transportation: GLHF will provide bus transportation from Milwaukee (7:30 am), Delafield (8:00 am). There is a limited amount of parking near the Capitol so we encourage you to ride with us! Please note your location pick up on your registration.

Attire: Business casual attire is appropriate. Show your suport for Bleeding Disorders Awareness and wear red!

Questions: Please contact Karin Koppen at either 414.937.6782 or kkoppen@glhf.org.

Frequently Asked Questions



The National Hemophilia Foundation (NHF) will host the annual Washington Days advocacy event March 7-9, 2018 on Capitol Hill in Washington, DC. NHF's Washington Days is an opportunity for people affected by bleeding disorders to advocate for issues that are importatnt to them. Last year's Washington Days had more than 500 volunteer advocates from 47 states that met with legislators and staff to discuss maintaining key patient protections in the Affordable Care Act. 

To register for 2018 Washington Days, please click here.

For the 2018 Washington Days agenda, please click here

For highlights from the 2017 Washington Days, check out our news story.

To see our Washington Days Frequently Asked Questions click here.

National Advocacy Priorities


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Murky Waters: Dealing with Uncertainty in Healthcare, by Michael Bradley