Our Stories

Introducing Owen!

Owen is just like any other 2-year old boy. He loves to explore, play and watch construction equipment and airplanes. He also knows how to push his sister Abby's buttons - but is quick to hug her when he makes her cry. There is one thing, or lack thereof, that separates Owen from the rest of his peers. Owen was diagnosed with Severe Hemophilia A shortly after birth, a bleeding disorder that prevents his blood from clotting.

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Meet Dean!

Jessica details her son's life with hemophilia

Some might consider Dean to be "lucky," because although he has severe hemophilia, he is infused on an as needed basis. He doesn't receive scheduled infusions 2-3 times per week...yet. This is not typical for most sufferers with severe hemophilia. 

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Follow Tracie and her son Zach's story - a story that now encompasses not only their family life, but advocacing for the bleeding disorders community at places like Washington Days in Washington, D.C.

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Meet David Varney

David has never let hemophilia slow him down, completing ten triathlons since 2015.  A message about following your passion and the importance of SUPPORT.

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Meet George and Tracie - Along with Tracie's Son, Zach

George and Tracy, along with Tracie's son, Zach, travelled to Washington Days this past year to address issues such as maintianing funding for Hemophilia Traetment Centers (HTCs), increasing the availablility of Medicare funds to cover the cost of hemophlilia drugs at skilled nursing faciliites and moving hemophilia medications from Tier IV to Tier III Insurance coverage. George is 84 years old and still lives with hemophililia. Tracie and her son, Zach, coninute to advocate for and be a voice for those living with bleeding disorders.

To read their full story, click here.

Meet the Yosts

The Yosts share their story about what it's like living with von Willebrand Disease. The Yost's have three generations with the same diagnosis, but three very different experiences with it!

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Meet Isaiah, a GLHF Scholarship Recipient

Isaiah Reeves is a GLHF Scholarship Recipient who is pursuing a career as a pediatric hematologist / onologist.

Read Isaiah's full story and how GLHF's Scholarship program has benefited his future goals. 

Camp Klotty Pine Improves the Lives of Children Like Daniel, Don and Desmond

Here is a story about one of our client's famlilies who, because of our programs, are able to safely naviagete the challenges of living with a bleeding disorers. Please read how gifts to GLHF improve daily life for children like Daniel, Don, Desmond and hundreds of other individuals who manage bleeding disorders every day.

Read their full story!

Archived Stories


Meet Crosby 

Crosby is a charming little boy, who loves his siblings, enjoys reading, soccer, and hanging out at the hockey rink. One of the things Crosby has his heart set on is Camp. During Family Camp, his mom noticed incredible changes in her son. Camp was a space where he could try things he hadn’t done before and couldn’t do elsewhere.

Read more about Crosby.